Advisory Board

Advisory Board

Advisory Board Representing Name EWG
Strategic BoMS ERN Board of Member States Birute Tumiene all
Strategic BoMS Finland Helena Kääriainen all
Strategic BoMS Ireland Eileen Treacy all
Strategic BoMS Poland Katarzyna Kotulska-Jozwiak all
Strategic JRC Joint Research Centre Simona Martin all
Strategic ERC European Research Council Jean-Pierre Bourguignon, to be invited all
Strategic IRDiRC International Rare Disease Research Consortium Lucia Monaco all
Strategic EJP RD European Joint Programme on Rare Diseases Daria Julkowska all
Strategic EJP RD European Joint Programme on Rare Diseases Rima Nabbout all
Strategic EPF European Patient’s Forum to be invited all
Regulatory EMA European Medicines Agency Kristina Larsson (head of Orphan Office) WP4
Regulatory NCA-CHMP National Competent Authorities-Committee for Medicinal Products for Human Use Bruno Sepodes WP4
Innovation EFPIA European Federation of Pharmaceutical Industries and Associations Edith Frénoy WP5
Innovation EUCOPE proposed Delphine Roulland, to be invited WP5
Innovation EuropaBio proposed Bernard Grimm, to be invited WP5
Innovation MedTech proposed Caterina Marcon, to be invited WP5
Innovation COCIR Digital industry Nicole Denjoy (Secretary General) Danny Van Roijen, to be invited WP5