Presentations ERICA GA2023

Presentations ERICA GA2023

The ERICA 3rd General Assembly took place 6-7 July, 2023 in Madrid as a face-to-face meeting.

GA groupfoto

DAY 1

Envisioned Future of ERNs Research Hélène Le Borgne (European Commission):

Download presentation of Hélène Le Borgne (, 3 MB)

 

Rare Diseases Clinical Research Network in USA Tiina Urv ((DRDRI)NIH, USA):

Download presentation of Tiina Urv (, 5 MB)

 

WP2 ‘‘Data Collection, Integration and Sharing’ EWG session:

Download presentation Current status of ERN Registries (, 1,021 KB)
Download presentation EJP RD Virtual Platform (, 1 MB)
Download presentation of Christina Vossler-Wolf Use case ERN Registries (, 671 KB)

 

WP4 ‘‘Clinical Trial Support’’ EWG session:

Download presentation Results of the ERN-Wide survey (, 1 MB)
Download presentation Results of ERICA WP4 Survey 2023 (, 923 KB)
Download presentation of Dieter Hilgers WP4 activities (, 1 MB)

 

WP6 ‘Integration, Outreach & Dissemination’ EWG session:

Download presentation of WP6 session (, 2 MB)

 

DAY 2

WP5 ‘‘Translation and Innovation’’ EWG session:

Download presentation of WP5 Expert WG  (, 1 MB)

Innovation workshop and Translation Drug Repurposing:

Download presentation of Nicola Specchio Drug Repurposing in Epilepsy (, 4 MB)
Download presentation of Eduard J van Beers Drug repurposing in rare disease (, 4 MB)
Download presentation of Donald Lo Pathways in Drug Repurposing (, 4 MB)

 

WP3 ‘‘Patient Centered Research’’ EWG session:

Download presentation of WP3 session  (, 3 MB)
Download presentation of Vicky McGrath Repository and clustering use case: PROMs in reimbursement decision making process (, 360 KB)

 

Together for Rare Diseases Anton Ussi (EATRIS, Together4RD):

Download presentation of Anton Ussi (, 1 MB)