General

The ERKReg, a Web-based registry for all patients with rare kidney diseases, recently established by the European Rare Kidney Disease Reference Network (ERKNet), has just crossed the 10,000 patients mark.

This important milestone was reached after the 10,000^th patient has been enrolled in the Registry by Ghiles Larbi from the Necker Hospital in Paris, France. Almost 1800 patients have already been enrolled from the Necker Hospital! Read

The European Rare Disease Coordination and Support Action (ERICA) kick-off meeting / 1^st General Assembly (GA) was held 27^th and 28^th May 2021 and was chaired by the Coordinator Alberto Pereira.

The meeting was held virtually due to pandemic circumstances. During the assembly beside the plenary sessions, the Work Package (WP) specific Expert Working Group (EWG) sessions were organised. Read

Open Research Europe (OCE) is an open access publishing platform for the publication of research stemming from Horizon 2020 funding across all subject areas. The platform makes it easy for Horizon 2020 beneficiaries to comply with the open access terms of their funding and offers researchers a publishing venue to share their results and insights rapidly and facilitate open, constructive research discussion. Read

On March, 1^st 2021 the European Rare Disease Research Coordination and Support Action (ERICA) has started! The aim of the ERICA consortium, in which all 24 European Reference Networks (ERNs) take part, is to build on the strength of the individual ERNs and create a platform that integrates all ERNs research and innovation capacity. Read