The Blackswan Foundation , IRDiRC and EJPRD are hosting the 7th RE(ACT) Congress and 5th IRDiRC Conference that will be held in person in Berlin, Germany from March 15th [...]
https://erica-rd.eu/newsletter/erica-newsletter-spring-2022/
University Medical Centre Groningen (UMCG) and Fondazione Telethon (FTELE) along with other EJP RD partners are organizing an EJP RD Training Workshop titled “Genetic Biobanks for Rare Disease Research” targeted at biomedical researchers, [...]
The third run of the MOOC (Massive Open Online Course) “Diagnosing Rare Diseases: from the Clinic to Research and back” co-developed by EJP RD, ERN Ithaca, ERN GENTURIS and the French [...]
Happy to share: the birth of the Journal of Rare Diseases (JORD) published by Springer https://www.springer.com/journal/44162 Journal of Rare Diseases is an open access, peer-reviewed journal [...]