The ERKReg, a Web-based registry for all patients with rare kidney diseases, recently established by the European Rare Kidney Disease Reference Network (ERKNet), has just crossed the 10,000 patients mark.
This important milestone was reached after the 10,000th patient has been enrolled in the Registry by Ghiles Larbi from the Necker Hospital in Paris, France. Almost 1800 patients have already been enrolled from the Necker Hospital!
We are also happy to share that the objectives, design and initial results of ERKReg have been recently summarized in a paper published in Orphanet Journal of Rare Diseases.
You can access the full version of the paper here.