| Supporting the continuous development and use of a patient partnership framework in European rare disease networks (ERNs): a scoping review of frameworks in the scientific literature. | Spivack OKC, Klein Haneveld MJ, Louisse S, Slater G, Hernando I | 2024-12-21 | Europe, Health system, Involvement, Orphan disease, Patient engagement | Journal of community genetics |
| A Narrative Review of Patient-Reported Outcome Measures and Their Application in Recent Pediatric Surgical Research: Advancing Knowledge and Offering New Perspectives to the Field. | Spivack OKC, Dellenmark-Blom M, Dingemann J, Ten Kate CA, Wallace V, Bramer WM, Quitmann JH, Rietman A | 2024-04-01 | | European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie |
| Validation of the Clavien-Madadi Classification for Unexpected Events in Pediatric Surgery: A Collaborative ERNICA Project. | Madadi-Sanjani O, Kuebler JF, Brendel J, Costanzo S, Granström AL, Aydin E, Loukogeorgakis S, Lacher M, Wiesner S, Domenghino A, Clavien PA, Mutanen A, Eaton S, Ure BM | 2024-03-16 | Adverse events, Clavien-Dindo, Clavien-Madadi, Complications, Unexpected events | Journal of pediatric surgery |
| Long-Term Evaluation of the Shape of the Reconstructed Diaphragm in Patients with Left-Sided Congenital Diaphragmatic Hernia Using Serial Chest Radiographs and Correlation to Further Complications. | von Schrottenberg C, Lindacker M, Weis M, Büttner S, Schaible T, Boettcher M, Wessel LM, Zahn KB | 2024-01-22 | CDH, chest radiographs, comorbidities, congenital diaphragmatic hernia, long-term follow-up, reconstructed diaphragm, recurrence | Journal of clinical medicine |
| Selection of Quality Indicators to Evaluate Quality of Care for Patients with Esophageal Atresia Using a Delphi Method. | Teunissen NM, Brendel J, Heurn LWEV, Ure B, Wijnen R, Eaton S | 2023-12-12 | | European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie |
| Transitional Care for Patients with Congenital Colorectal Diseases: An EUPSA Network Office, ERNICA, and eUROGEN Joint Venture. | de Beaufort CMC, Aminoff D, de Blaauw I, Crétolle C, Dingemann J, Durkin N, Feitz WFJ, Fruithof J, Grano C, Burgos CM, Schwarzer N, Slater G, Soyer T, Violani C, Wijnen R, de Coppi P, Gorter RR | 2023-12-01 | Adult care, Anorectal malformation, Hirschsprung disease, Transition of care | Journal of pediatric surgery |
| Implementation and validation of a novel instrument for the grading of unexpected events in paediatric surgery: Clavien-Madadi classification. | Madadi-Sanjani O, Kuebler JF, Brendel J, Wiesner S, Mutanen A, Eaton S, Domenghino A, Clavien PA, Ure BM | 2023-04-12 | | The British journal of surgery |
| Patients' Quality of Life is Severely Impacted by Mere Discussions without Realization of the Imperative Centralization of Specialist Surgery and Subsequent After-Care. | Schmiedeke E, Schwarzer N, Widenmann-Grolig A, Aminoff D, Slater G | 2023-04-01 | | European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie |
| Long-Term Evaluation of Gastroesophageal Reflux in Neonates with and without Preventive Anti-reflux Surgery at the Time of Congenital Diaphragmatic Hernia Repair. | von Schrottenberg C, Deeg S, Weiss C, Adam R, Wessel LM, Boettcher M, Zahn KB | 2022-07-29 | CDH, GER, congenital diaphragmatic hernia, fundoplication, gastroesophageal reflux, long-term follow-up, preventive anti-reflux surgery | Children (Basel, Switzerland) |
| Small Bowel Obstruction After Neonatal Repair of Congenital Diaphragmatic Hernia-Incidence and Risk-Factors Identified in a Large Longitudinal Cohort-Study. | Zahn KB, Franz AM, Schaible T, Rafat N, Büttner S, Boettcher M, Wessel LM | 2022-01-01 | adhesions, adhesive small bowel obstruction (SBO), congenital diaphragmatic hernia (CDH), intestinal complications, longitudinal follow-up, risk factors | Frontiers in pediatrics |
| Objective Professionals, Subjective Patients? Unbiased Thinking Facilitates Better, Multidimensional Treatment. | Schmiedeke E, Ohlms J, Faiss M, Stamatopoulos E, Schwarzer N, Widenmann-Grolig A, Aminoff D, Haanen M, Cavalieri D, Jenetzky E | 2021-10-01 | | European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie |
| Longitudinal Follow-Up With Radiologic Screening for Recurrence and Secondary Hiatal Hernia in Neonates With Open Repair of Congenital Diaphragmatic Hernia-A Large Prospective, Observational Cohort Study at One Referral Center. | Zahn KB, Schaible T, Rafat N, Weis M, Weiss C, Wessel L | 2021-01-01 | CDH, cone-shaped patch, congenital diaphragmatic hernia, longitudinal follow-up, radiologic screening, recurrence, risk factors for recurrence, secondary hiatal hernia | Frontiers in pediatrics |
| Letter to the Editor concerning Schmedding et al.: Decentralised surgery of abdominal wall defects in Germany (Pediatr Surg Int (2020) 36:569-578). | Schmiedeke E, Aminoff D, Schwarzer N, Slater G, Power B, Widenmann-Grolig A, Feitz W, Wessel L, Wijnen R | 2020-09-01 | | Pediatric surgery international |
| Non-financial conflicts of interest: contribution to a surgical dilemma by the European Reference Networks for Rare Diseases. | Schmiedeke E, Schaefer S, Aminoff D, Schwarzer N, Jenetzky E | 2019-09-01 | Anorectal malformation, Congenital malformation, European Reference Networks, Non-financial conflict of interest, Patient organisation, Volume-outcome relationship | Pediatric surgery international |
| Prenatal diagnosis and management of congenital diaphragmatic hernia. | Basurto D, Russo FM, Van der Veeken L, Van der Merwe J, Hooper S, Benachi A, De Bie F, Gomez O, Deprest J | 2019-07-01 | Congenital diaphragmatic hernia, Prenatal prediction, Prenatal therapy, Pulmonary hypoplasia, Sildenafil | Best practice & research. Clinical obstetrics & gynaecology |
| Lower Distending Pressure Improves Respiratory Mechanics in Congenital Diaphragmatic Hernia Complicated by Persistent Pulmonary Hypertension. | Guevorkian D, Mur S, Cavatorta E, Pognon L, Rakza T, Storme L | 2018-09-01 | congenital diaphragmatic hernia, persistent pulmonary hypertension, positive end-expiratory pressure, respiratory mechanics | The Journal of pediatrics |
| Fetoscopic endoluminal tracheal occlusion and reestablishment of fetal airways for congenital diaphragmatic hernia. | Van der Veeken L, Russo FM, De Catte L, Gratacos E, Benachi A, Ville Y, Nicolaides K, Berg C, Gardener G, Persico N, Bagolan P, Ryan G, Belfort MA, Deprest J | 2018-01-01 | CDH, Congenital diaphragmatic hernia, FETO, Fetal endoluminal tracheal occlusion, Fetal surgery, Fetoscopy | Gynecological surgery |
| A Vestibular Rapid Palatal Expander. | Porseo M, Monaco B, Festa F, Fiorillo G | 2016-02-01 | | Journal of clinical orthodontics : JCO |
