12th edition of the European Conference on Rare Diseases and Orphan Products (ECRD)

ECRD

The European Conference on Rare Diseases & Orphan Products (ECRD) is the event that allows the dialogue and collaboration of over 1500 stakeholders in the rare disease community. The 12th edition coordinated by EURORDIS and co-organized by Orphanet will be celebrated next summer, from 15th to 16th May 2024.

The ECRD is the largest, patient-led, rare disease policy-shaping event held in Europe.

By bringing together people with rare diseases and patient advocates, policy makers, healthcare industry representatives, clinicians, regulators and Member State representatives, EURORDIS harnesses the power of this extensive network to shape goal-driven rare disease policies of the future.

With over 1000 participants, the Conference is an unrivalled opportunity to network and exchange invaluable insights within the rare disease community. Through collaborative efforts, these discussions culminate in clear policy recommendations that can influence both EU and national policies.

Get ready for the next ECRD, a fully hybrid conference taking place on 15 & 16 May 2024 online and at The Square in Brussels.

PROGRAMME

Registration is now open with a limited number of 300 places available to join us in person and early-bird fees available until 2 February!

Patient groups, academics, health care professionals, and all other interested parties who have conducted research or studies on rare diseases or public health projects are invited to submit a poster abstract to the ECRD 2024 in any of the recommended themes:

  • RESEARCH & INNOVATION
  • ACCESS TO HIGHLY SPECIALIZED CARE
  • MENTAL WELLBEING & HOLISTIC CARE
  • RARE DISEASE NATIONAL PLANS
  • DIAGNOSIS & SCREENING
  • ACCESS, AVAILABILITY, AND AFFORDABILITY OF TREATMENTS
  • OPEN TOPIC

Symposium summary

Symposium12th edition of the European Conference on Rare Diseases and Orphan Products (ECRD)
DateMay 15th - May 16th, 2024
Time8:45 – 17:30 hr (start at 9:30 hr)
LocationBrussels, Belgium and Online
OrganisationECRD
WebsiteVisit symposium website
RegistrationRegister for symposium
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