Approaches to the Evaluation of Evidence for Rare Disease and Complex Conditions Guidelines

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It is well acknowledged that a different approach is needed to evaluate new Orphan Medicines compared to standard medicines and vaccines, due to the small population numbers that are impacted by rare diseases.

With limited published evidence available, how can we adopt an enhanced approach to reviewing all the available information on new rare disease medicines in order to support clinical decision making?

This webinar will bring together experts and methodologists experienced in successfully navigating the underlying issues. They will propose solutions for developing effective guidelines for the evaluation of evidence to support clinical decision making for people living with a rare or complex condition.

It is well acknowledged that a different approach is needed to evaluate new Orphan Medicines compared to standard medicines and vaccines, due to the small population numbers that are impacted by rare diseases.

Webinar summary

WebinarApproaches to the Evaluation of Evidence for Rare Disease and Complex Conditions Guidelines
DateApril 29th, 2024
Time14:00 – 15:30 hr
LocationZoom
OrganisationEURORDIS
WebsiteVisit webinar website
RegistrationRegistration is closed
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