ERICA General Assembly 2021

This event took place from May 27^th to May 28^th, 2021

On Thursday 27^th May 2021 (from 10.00 – 16.45 h) & Friday 28^th May 2021 (from 10.00 – 15.45 h) the kick-off meeting and the 1^st General Assembly of the European Rare Disease Research Coordination and Support Action (ERICA) was held.

Programme

Programme ERICA General Assembly 2021 (, 88 KB)

ga2021-online-meeting

Presentations

Welcome and general presentation of the project, Alberto Pereira (ERICA coordinator) (, 3 MB)

Challenges and opportunities of the ERICA project from the EC- DG Research perspective, Hélène Le Borgne (EC- DG Research) (, 2 MB)

EURORDIS Vision of rare disease research in the next 15 years from the Rare 2030 perspective, Yann Le Cam (EURORDIS) (, 2 MB)

Challenges and opportunities of ERICA in relation to EJP RD, Daria Julkowska (EJP RD coordinator) (, 1 MB)

WP2 Introduction Data Collection, Integration and Sharing, Franz Schaefer and Eduardo Lopez Granados (, 3 MB)

WP3 Introduction Patient Centered Research, Mar Mañú Pereira and Ana Rath (, 714 KB)

WP4 Iintroduction Clinical Trial Support, Luca Sangiorgi and Ralf-Dieter Hilgers (, 763 KB)

WP5 Introduction Translation and Innovation, Ruth Ladenstein and Anton Ussi (, 810 KB)

WP6 Introduction Integration, Outreach & Dissemination, Alberto Pereira and Maurizio Scarpa (, 2 MB)

WP7 Introduction Ethics Requirements, Alberto Pereira (, 546 KB)

Synergies between the EU RD Platform and ERICA, Simona Martin (JRC) (, 3 MB)

Rare disease research from the IRDiRC perspective, Lucia Monaco (IRDiRC) (, 3 MB)

Event summary

Event	ERICA General Assembly 2021
Date	May 27^th - May 28^th, 2021
Location	Online
Organisation	ERICA
Registration	Registration is closed
Download	‘ERICA-GA2021.pdf’ (, 88 KB)