Together for Rare Diseases & ERICA Webinar

ERICA T4RD

Industry brings resources and knowledge beyond funding, an articulation of the contribution of the private sectors in public-private partnerships in rare disease research

πŸ“† Thursday 16 January | πŸ•” 5:00-5:45 pm CET

Together For Rare Diseases with ERICA are launching a series of webinars on how to work between industry and ERNs for partnering in research with joint projects.

Moderator: Sheela Upadhyaya, Chair, Together For Rare Diseases

Speakers:

  • Vinciane Pirard, Scientific Advocacy and Insights, Global Medical Affairs – Rare Diseases, Sanofi
  • Luca Sangiorgi, Director, Rare Bone Disorders Department and Coordinator Rare Bone Diseases Centre Istituto Ortopedico Rizzoli, ERN BOND Coordinator, ERN BOND
  • Anton Ussi, Operations and Finance Director, EATRIS

Target Audience: European Reference Network representatives

Webinar objectives:

  • To articulate the contribution of industry in public private partnerships beyond funding
  • To provide examples of concrete examples on how industry brought value to research projects

Agenda: 17:00: Welcome and Introduction (Sheela)
17:02: The different contributions of the industry in public-private partnerships in Rare Diseases Research continuum (Vinciane Pirard)
17:19: A major gap in academic rare disease research: a lack of regulatory-grade outcomes (Anton Ussi)
17:27: Case Study: The OI Project (Luca Sangiorgi)
17:35: Panel discussion
17:45: Closing Remarks & Conclusion (Sheela)

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Webinar summary

WebinarTogether for Rare Diseases & ERICA Webinar
DateJanuary 16th, 2025
Time17:00 – 17:45 hr
OrganisationTogetehr4RD & ERICA
RegistrationRegistration is closed
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Together for Rare Diseases & ERICA Webinar about ERNs for Industry partners