
Industry brings resources and knowledge beyond funding, an articulation of the contribution of the private sectors in public-private partnerships in rare disease research
π Thursday 16 January | π 5:00-5:45 pm CET
Together For Rare Diseases with ERICA are launching a series of webinars on how to work between industry and ERNs for partnering in research with joint projects.
Moderator: Sheela Upadhyaya, Chair, Together For Rare Diseases
Speakers:
- Vinciane Pirard, Scientific Advocacy and Insights, Global Medical Affairs β Rare Diseases, Sanofi
- Luca Sangiorgi, Director, Rare Bone Disorders Department and Coordinator Rare Bone Diseases Centre Istituto Ortopedico Rizzoli, ERN BOND Coordinator, ERN BOND
- Anton Ussi, Operations and Finance Director, EATRIS
Target Audience: European Reference Network representatives
Webinar objectives:
- To articulate the contribution of industry in public private partnerships beyond funding
- To provide examples of concrete examples on how industry brought value to research projects
Agenda:
17:00: Welcome and Introduction (Sheela)
17:02: The different contributions of the industry in public-private partnerships in Rare Diseases Research continuum (Vinciane Pirard)
17:19: A major gap in academic rare disease research: a lack of regulatory-grade outcomes (Anton Ussi)
17:27: Case Study: The OI Project (Luca Sangiorgi)
17:35: Panel discussion
17:45: Closing Remarks & Conclusion (Sheela)