Previous Events

Previous Events

ERICA WP4 Webinar: Framework for Patient Engagement in Clinical Trials

May 24th, 2023

EJP RD: ERN Workshop: Genetics and Precision Medicine in Rare Diseases

May 18th - May 19th, 2023

ERICA WP4 Webinar: Introduction on Patient-Reported Outcomes and considerations before including them in a clinical trial. Study case from the ERN-EuroBloodNet

May 10th, 2023(Full)

EJP RD – ERN Workshop RARE TOGETHER

May 8th - May 9th, 2023

ERICA WP4 Webinar: Designing and conducting clinical trials in rare diseases – what industries expect for partnering with clinical sites

April 14th, 2023(Full)

Training on strategies to foster solutions of undiagnosed rare disease

April 3rd - April 5th, 2023(Full)

ERICA WP4 Webinar: Definition of orphan drug by the EMA

March 28th, 2023(Full)

ERICA WP4 Webinar: Essential requirements before thinking about a clinical trial

February 28th, 2023(Full)

Joint HMA/EMA Multi-stakeholder workshop on Patient Registries 12&13 February 2024

February 12th - February 13th, 2024

ERN-ITHACA Multidisciplinary Fetal Diagnostics Winter School

December 7th - December 8th, 2022(Full)

International Conference on Clinical Research Networks for Rare Diseases

December 1st - December 2nd, 2022

Bring Your Own Omics Data workshop (BYOOD) workshop 17th-18th November 2022, Nijmegen, NL

November 17th - November 18th, 2022

WP5 Educational Webinar 2 “Practical guide on how to use the Catalogue of services and the IMT”

October 24th, 2022

ERN Data Management Strategy Workshop in Heidelberg on the 17th-18th of October 2022

October 17th - October 18th, 2022

“Ethics and regulatory considerations for ERN Data Access Committee members”

June 30th, 2022

ERICA 2nd General Assembly 20-22 June 2022, Bologna, Italy

June 20th - June 22nd, 2022

Rare Disease Clinical Trial Webinar: Composite endpoints including patient relevant endpoints (Quality of Life)

May 6th, 2022

EJPRD- ERICA 3rd Joint Workshop “Finding RD registry data in the Virtual Platform”

March 24th, 2022

ERICA WP3 ‘Patient centred research’ Expert Working Group Kick-off Meeting 8-10 March 2-5 pm

March 8th - March 10th, 2022

EMA Virtual meeting Repurposing ‘WALK-IN’ CLINIC

February 17th, 2022