Webinars

Webinars

Theme / Title Date Time CET Speaker(s) Register View
Join the launch of the Together4RD Toolkit for Public-Private Partnerships in Rare Disease Research 2025-06-23 17:00 hr Maurizio Scarpa, Daria Julkowska and Victoria Hedley
Together for Rare Diseases & ERICA Webinar 2025-01-16 17:00 – 17:45 hr
Together for Rare Diseases & ERICA Webinar about ERNs for Industry partners 2024-12-02 17:00 – 17:45 hr Alberto Pereira, Franz Schäfer, Katarzyna Mosiewicz and Sheela Upadhyaya
Disease Specific Measures 2024-07-24 15:00 – 16:30 hr Tanja Wlodkowski, Faisal Ahmed, Ana Priego Zurita and Johan de Graaf
c4c expert advice, patient and public involvement, data standards 2024-05-03 13:00 – 14:00 hr Mark Turner, Fenna Mahler, Pamela Dicks and Becca Leary
Approaches to the Evaluation of Evidence for Rare Disease and Complex Conditions Guidelines 2024-04-29 14:00 – 15:30 hr
c4c trials, education and training 2024-04-11 13:00 – 14:00 hr Mark Turner, Chloe Bickerstaff, Francesca Rocchi and Becca Leary
EMA Webinar on Rare World Diseases Day 2024-02-29 16:00 – 17:25 hr Kristina Larsson, Virginie Hivert, Melanie Carr, Hélène Le Borgne, Theodor Framke, Violeta Stoyanova-Beninska, Iordanis Gravanis, Maria Mavris and Maribel Rico-Salas
Transitioning trials to the CTR (CTIS) for non-commercial sponsors 2024-02-09 10:00 – 13:00 hr
“Bridging the gap between promising preclinical data and a successful clinical trial” 2023-10-19 16:00 – 17:00 hr Gilles Vassal and Joanne Lee
REMEDI4ALL / drug repurposing and clinical trial readiness by Anton Ussi 2023-10-02 13:00 – 14:00 hr Anton Ussi
Framework for Patient Engagement in Clinical Trials 2023-05-24 15:00 – 16:00 hr Virginie Hivert and María Cavaller Bellaubi
Introduction on Patient-Reported Outcomes and considerations before including them in a clinical trial. Study case from the ERN-EuroBloodNet 2023-05-10 12:30 – 13:30 hr Céline Desvignes-Gleizes, Andreas Glenthøj and Dore Peereboom
Designing and conducting clinical trials in rare diseases – what industries expect for partnering with clinical sites 2023-04-14 12:30 – 13:30 hr Diego Ardigò
Definition of orphan drug by the EMA 2023-03-28 12:30 – 13:30 hr Armando Magrelli
Essential requirements before thinking about a clinical trial 2023-02-28 12:00 – 13:00 hr Viviana Giannuzzi
Joint HMA/EMA Multi-stakeholder workshop on Patient Registries 12&13 February 2024 2023-02-12
WP5 Educational Webinar 2 “Practical guide on how to use the Catalogue of services and the IMT” 2022-10-24 13:00 – 14:00 hr Anton Ussi, Agustin Arasanz Duque and Rosan Vegter
Composite endpoints including patient relevant endpoints (Quality of Life) 2022-05-06 16:00 – 18:30 hr Johan Verbeeck
EMA Virtual meeting Repurposing ‘WALK-IN’ CLINIC 2022-02-17 17:00 – 18:30 hr
Does Randomization matter in RD clinical trials? 2021-12-14 Ralf-Dieter Hilgers
EMA Webinar for SMEs and Academia on the Clinical Trials Regulation and the Clinical Trials Information System 2021-11-29 9:00 – 13:30 hr
Educational Webinar 1 Current research services available for the rare diseases community 2021-11-08 15:00 – 16:00 hr Anton Ussi