ERKReg Reaches 10,000 Patients

The ERKReg, a Web-based registry for all patients with rare kidney diseases, recently established by the European Rare Kidney Disease Reference Network (ERKNet), has just crossed the 10,000 patients mark.

This important milestone was reached after the 10,000th patient has been enrolled in the Registry by Ghiles Larbi from the Necker Hospital in Paris, France. Almost 1800 patients have already been enrolled from the Necker Hospital! Read

Presentations ERICA General Assembly 27th -28th May 2021

The European Rare Disease Coordination and Support Action (ERICA) kick-off meeting / 1st General Assembly (GA) was held 27th and 28th May 2021 and was chaired by the Coordinator Alberto Pereira.

The meeting was held virtually due to pandemic circumstances. During the assembly beside the plenary sessions, the Work Package (WP) specific Expert Working Group (EWG) sessions were organised. Read

ERICA Kick-off meeting and first General Assembly

On Thursday 27th May 2021 (from 10.00 – 16.45 h) & Friday 28th May 2021 (from 10.00 – 15.45 h) the kick-off meeting and the first General Assembly of the European Rare Disease Research Coordination and Support Action (ERICA) will be held.

Alberto Pereira, as ERICA Coordinator, will be the chairman of this 1st General Assembly. Read

Website ERICA live

We are proud to introduce you on May 27th,2021 the new website of the European Rare Disease Research Coordination and Support Action consortium (ERICA). On the same day of ERICA’s kick-off meeting and first General Assembly.

It is important to note that currently the content of ERICAs website is still “work in progress”. So please visit our website on regularly base or click here to subscribe to the ERICA newsletter.

Announcement of the launch of “Open Research Europe”

Open Research Europe (OCE) is an open access publishing platform for the publication of research stemming from Horizon 2020 funding across all subject areas. The platform makes it easy for Horizon 2020 beneficiaries to comply with the open access terms of their funding and offers researchers a publishing venue to share their results and insights rapidly and facilitate open, constructive research discussion. Read