Join the first international drug repurposing conference “Bridging Boundaries: Innovating, Connecting & Reshaping Drug Repurposing”, #iDR24, co-organised by REMEDi4ALL ,Beacon and MeRIT on 6-7 March 2024 in Barcelona. REMEDi4ALL is Horizon Europe-funded project which aims at building a sustainable drug repurposing platform in Europe with an approach of co-creation amongst researchers, clinicians and patients.
In this global event, key opinion leaders from both the research and patient communities, funders, regulators and representatives from the private sector will participate to collectively advance innovative drug repurposing in Europe and beyond.
Among others rare disease patient organisation EURORDIS is hosting [...]
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REGISTRATION IS NOW OPEN here ONLINE REGISTRATION until 14 January 2024. Registration will remain open for the reserve list only until 4 February 2024.
The International Course “Training on strategies to foster solutions of undiagnosed rare disease cases” 13-15 March 2024 is part of a series of training activities proposed by the EJP RD. The Course is made up of 3 days training organized by ISS, Istituto Superiore di Sanità, Rome, Italy. The course will be only in person.
Several initiatives have been undertaken at national and international level for undiagnosed rare diseases aimed at identifying clinical pathways [...]
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The European Rare Disease Research Coordination and Support Action- ERICA and European Joint Programme of Rare Diseases (EJP RD)
Joint Conference took place 21st November 2023 in Amsterdam University Medical Centre.
Main topics:
Examples of Synergies between both projects (ERICA & EJP RD) Collaboration of ERNs and non-ERNs researchers Preparing the path to the European Rare Diseases Research Alliance (ERDERA)
View the full programme (, 172 KB).
Overview of all Presentations ERICA & EJP RD Joint Conference.
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Fondazione Gianni Benzi, that is organising the XVI Foresight Training Course “Repurposing to cover unmet needs: the current scenario in Europe and the proposed changes to the Pharmaceutical Legislation”, that will be held on 18 December 2023 in Bari, Italy and online.
The Course will deal with:
Current and proposed regulatory provisions and decision-making to be undertaken in the EU for Research & Development (R&D) and marketing authorisation; Industry and academic approaches and collaboration to repurposing as a R&D opportunity; Commercial perspectives and strategies to repositioning drugs; The meaning of repurposing in the paediatric context; Need for specific [...]
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In this Webinar we are focusing on the importance of translational research referred to “bench-to-bedside” by showcasing two successful models for bridging the gap between preclinical and clinical research.
Paediatric Oncologist Professor Gilles Vassal from Institute Gustave Roussy, distinguished member of the ERNPaedCan, will present the ACCELERATE, an international multistakeholder organization to improve and accelerate new drug development for children and adolescent with cancer.
Joanne Lee from Newcastle University will talk about ACT concept (Advisory Committees for Therapeutics) and introduce the ACT toolkit. She will also provide background about the TACT Neuromuscular model and talk about [...]
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ERICA WP4 Clinical Trial Support webinar
Monday October 2nd
From 13:00 to 14:00 CEST
Speaker: Anton Ussi
This webinar will discuss challenges associated with getting ready for and conducting clinical trials in drug repurposing, with a focus on differences between trial requirements for future on-label or off-label use. The discussion will also highlight key services and tools available to the community, as well as the REMEDi4ALL projects support offering.
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The European Rare Disease Research Coordination and Support Action- ERICA 3rd General Assembly took place 6-7 July 2023 in Madrid
We had two productive days full of interactive sessions and we are thankful for everyone’s active contributions both in Madrid and remotely.
All the presentations are now available at the ERICA Website
PRESENTATIONS
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WP5 Translation and Innovation is organizing Innovation workshop focused on drug repurposing in rare diseases.
In the first part of the workshop, we will showcase success stories from two different ERNs as an inspiration for the community. Eduard J van Beers from ERN EuroBloodNet will give talk about mitapivat story and building relations with biomedical industry into investigator-initiated research programmes, and Nicola Specchio from ERN EpiCare will talk about drug repurposing in epilepsy.
In the second part of the workshop, expert Donald Lo from EATRIS (REMEDI4ALL project) will lead interactive session on [...]
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27th June 2023 ERICA to support ERNs and other concerned paediatric organisations presented an open letter to EU Commissioner Kyriakides requesting urgent action to secure essential medical devices for patients of orphan disease. 5 simple actions are requested to preserve availability of vital medical devices for orphan diseases.
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