Educational Webinar 1 Current research services available for the rare diseases community


In this webinar, Anton Ussi, ERICA WP5 co-lead from from EATRIS will introduce the cutting edge resources and research services provided by the European Life Science Research Infrastructures (LS RIs) in the field of rare diseases. This webinar will empower ERN researchers to use the wide range of preclinical, clinical, regulatory and development services provided by the European infrastructures ranging from samples, data & databases, technologies & facilities, models & tools to expertise & advice.


WP6-specific EWG

ERICA Work Package 6 WP6 “Integration, Outreach & Dissemination” Expert Working Group (EWG) meeting.

Meeting chaired by: Alberto Pereira, Maurizio Scarpa and Ana Rath

Outreach and project dissemination are the hallmarks of this action.

WP6 has tight inter-connection with other WPs, coordinate the outreach to multiple stakeholders, develop and maintain a central ERN research website (incorporation with Orphanet), and to disseminate all ERN research results.

All ERNs should be represented in this Expert WG.


ERKReg Reaches 10,000 Patients


The ERKReg, a Web-based registry for all patients with rare kidney diseases, recently established by the European Rare Kidney Disease Reference Network (ERKNet), has just crossed the 10,000 patients mark.

This important milestone was reached after the 10,000th patient has been enrolled in the Registry by Ghiles Larbi from the Necker Hospital in Paris, France. Almost 1800 patients have already been enrolled from the Necker Hospital!


Announcement of the launch of “Open Research Europe”


Open Research Europe (OCE) is an open access publishing platform for the publication of research stemming from Horizon 2020 funding across all subject areas. The platform makes it easy for Horizon 2020 beneficiaries to comply with the open access terms of their funding and offers researchers a publishing venue to share their results and insights rapidly and facilitate open, constructive research discussion.


ERICA General Assembly 2021

On Thursday 27th May 2021 (from 10.00 – 16.45 h) & Friday 28th May 2021 (from 10.00 – 15.45 h) the kick-off meeting and the 1st General Assembly of the European Rare Disease Research Coordination and Support Action (ERICA) was held.