Presentations ERICA General Assembly 27th -28th May 2021

Posted on June 7th, 2021December 7th, 2021

The European Rare Disease Coordination and Support Action (ERICA) kick-off meeting / 1^st General Assembly (GA) was held 27^th and 28^th May 2021 and was chaired by the Coordinator Alberto Pereira.

The meeting was held virtually due to pandemic circumstances. During the assembly beside the plenary sessions, the Work Package (WP) specific Expert Working Group (EWG) sessions were organised.

Programme

Programme ERICA General Assembly 2021 (, 88 KB)

ga2021-online-meeting

Presentations

Welcome and general presentation of the project, Alberto Pereira (ERICA coordinator) (, 3 MB)

Challenges and opportunities of the ERICA project from the EC- DG Research perspective, Hélène Le Borgne (EC- DG Research) (, 2 MB)

EURORDIS Vision of rare disease research in the next 15 years from the Rare 2030 perspective, Yann Le Cam (EURORDIS) (, 2 MB)

Challenges and opportunities of ERICA in relation to EJP RD, Daria Julkowska (EJP RD coordinator) (, 1 MB)

WP2 Introduction Data Collection, Integration and Sharing, Franz Schaefer and Eduardo Lopez Granados (, 3 MB)

WP3 Introduction Patient Centered Research, Mar Mañú Pereira and Ana Rath (, 714 KB)

WP4 Iintroduction Clinical Trial Support, Luca Sangiorgi and Ralf-Dieter Hilgers (, 763 KB)

WP5 Introduction Translation and Innovation, Ruth Ladenstein and Anton Ussi (, 810 KB)

WP6 Introduction Integration, Outreach & Dissemination, Alberto Pereira and Maurizio Scarpa (, 2 MB)

WP7 Introduction Ethics Requirements, Alberto Pereira (, 546 KB)

Synergies between the EU RD Platform and ERICA, Simona Martin (JRC) (, 3 MB)

Rare disease research from the IRDiRC perspective, Lucia Monaco (IRDiRC) (, 3 MB)